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Marta (4 yrs) was born with Niemann Pick C Disease (a rare progressive genetic disorder - there is no known cure and mainly affects children. Treatment is focused on helping people live with their symptoms).
Catherine, Thank you for your lovely e-mail and your quick replay! It is great to find somebody that can help us and who understand the difficult situations. We think that mountains can help Marta and also us to find peace and charge ourselves with postive energy. It is great to hear that still is possible to find a modality of ski for her with only 4 years old and her disease. Ana - mother of beneficiary
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