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Finding resorts...
A family that has a child with Kabuki Syndrome faces many challenges in their day-to-day life and so to be able to have an inclusive, accessible and well-being ski holiday is such a wonderful and magical experience. But it is not all about skiing, the mountains offer so many amazing activities and life-enhancing experiences year-round!! From kayaking with special assistance on Lake Brienz in the Jungfrau Region of Switzerland, donkey trecks in the Queyras National Park (France), the James Bond Experience in Solden (in the Otztal valley in Austria to so many more - the list is endless and all can be done with a little help from Mountains 4 All and, for the winter Ski 2 Freedom - two charities dedicated to bringing the mountains to your doorstep!
Kabuki syndrome is a rare, multisystem disorder characterized by multiple abnormalities including distinctive facial features, growth delays, varying degrees of intellectual disability, skeletal abnormalities, and short stature.
Meet the Aspin Family
Tandemflex Experience in Val d’Isere
Tandemski with ESF La Rosiere
A Belgian family ski together in Les Saisies
ESF Belle Plagne with Ludovine & Phoebe
Tetraplegic Tim Scott back on the slopes after 6 years
Meet Simon Atkinson, Director of ESF La Rosiere
A sit ski lesson with ESF Arc 2000
Winter
Skiing with Kabuki Syndrome is an activity that can be enjoyed almost anywhere - the following ski resorts have been visited by some of our beneficiaries and the ski schools have provided excellent instruction.
Chatel - France
Tignes - France - ESF Tignes Le Lac
However, there will be many more ski resorts that will be able to provide specialist ski instructors.
Please note that the information given here is provided by our beneficiaries and not directly as a result of personal experience from the Ski 2 Freedom research team.
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